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Why is Europe Targeting Down Syndrome Babies?

Should a woman who’s pregnant with a Down Syndrome baby be encouraged to abort it? Strangely enough, the answer to that question may depend on what country she lives in.

Due to genetic testing becoming more widely available, mothers have to face a gut wrenching choice if their test is positive. Most, understandably, would have mixed feelings and 67% of American ladies choose not to carry a Down Syndrome baby to term.

While 67% may seem high to some, it is nothing compared to the stats coming out of Europe: France is at 77%, the UK is 90%, Denmark is 98%, and Iceland is leading the pack with a nearly 100% rate!

Since it’s almost impossible in a free society to get 100% of the people to agree on anything, that is very, very suspicious and points towards a strong bias coming from the government. Rather than being given neutral information, ladies are pressured into following a terrible Eugenics agenda.

The push, of course, is based mostly on cost. Europe has fully socialized medicine and wants to control who gets the limited resources. Because they don’t deem the disabled “worthy” enough, the disabled may soon disappear!

This is frightening on so many levels. Instead of looking at humanity and the world from a God-based perspective, many folks in the science community want to play God themselves, with life and death powers over their fellow men and women. Should they get to decide that Down Syndrome isn’t fit to live? Because you know it won’t stop there—any type of disability could be next. What about the deaf, the blind, midgets, Autistic, low IQ, Epileptics, anyone who needs crutches or wheelchairs? Once we start down this slippery slope, it may never end.

I am passionate about protecting the rights of all people, especially those who have special needs. They are not handicapped; they’re handi-capable! Just because someone isn’t born “perfect” doesn’t mean that we have the right to judge them worthless. People with Down Syndrome are different, surely, but not bad! They are beautiful, loving, joyful folks who deserve what everyone else does. So what if they need extra medical help? Isn’t that what society is here to do, help those who need it most?

Time and time again, I am struck by the empty, vicious, one-sided argument that comes out of the Atheists. They believe in superiority, not equality, whereas a true person of faith recognizes that all people are created by the Lord, in his image, and only He can make or take a life. Not us.

I don’t judge any lady for what she chooses to do with her own uterus, but that choice must be freely made, without undue influence and unnecessary fear. If she decides not to, okay, but if a mother wants to keep her Down Syndrome baby, shame on any doctor who tries to talk her out of it. These decisions can’t be based on cash; they must be based on love. I dare anyone to look into these precious eyes and tell him he never should’ve been born…

 

Hope for Marian: A Mother’s Hanukkah Wish for Her Sick Child

The following guest post may be difficult to read, but it is also honest, poignant, and above all, a brave account of one mother’s struggle to save her terminally ill daughter. This beautiful little girl, Marian, needs our help! If you can, please contribute to her fund, and if you’re not financially able, you can still help by spreading the word and praying for her and her family.

Hanukkah, perhaps more than any other Jewish holiday, is the favorite holiday of children. As a Jewish American, it holds a special place in my memory. During my childhood, I could not wait to open a new gift each night! My mother would lay them out by the fireplace, and I’d shake and inspect each one before carefully making my selection, trying to foresee what would unfold.

Now that I am a mother of two small girls, I am reminded often of my childhood and relationship with my own mom. During this holiday season, instead of focusing on gifts and fun, I’m concerned with whether my younger daughter, Marian, who in most ways is a healthy and active two-year-old, will live or die.

In February, we received the news that Marian’s enlarged spleen and developmental delays were early warning signs of Niemann-Pick Type C. This disease is fatal with no cure. It causes neurodegeneration and progressive suffering. Without a cure, Marian will lose her ability to swallow, speak, move, and learn. As I sit and watch her laughing, playing and cuddling her big sister, it is difficult to imagine that this will truly be her fate. We know that without a cure, she will be lucky to live past ten-years-old, and whatever time she has left will be filled with crushing disabilities.

The immediate days after we received the news we terrible. We were in shock, devastated, and heartbroken. We had only recently learned recessive genetic conditions like these even exist—a whole category of “lysosomal storage disorders” affecting children and adults, all fatal and only a tiny amount with effective treatments.

Three things drove us forward in those early days, (1) a NPC parent telling us that we can do nothing or we can fight. We chose to fight for her life; (2) a NPC specialist telling us the disease is at a turning point of hope; and (3) the words my great aunt Elsie, a Holocaust survivor, said many times, and repeated over and over by my mom, “It should not get worse.”

And so, out of our devastation, came a ray of hope. We began traveling back and forth from Los Angeles to Chicago to receive an experimental treatment that is effective in slowing the disease progression. After two months, Marian went from not being able to stand independently to walking. After three months, we were able to transition her treatments to Los Angeles. After six months, her language comprehension increased.

Friends and family rallied around us in a way I never could have anticipated. We began raising money to help find a cure and we took the plunge in opening our lives and sharing our deepest pain and need. We are sharing our story for many reasons—to help others learn about NPC, to create awareness, and to accelerate research. All of these things will to help save Marian’s life and others with NPC.

As I sit and watch my two girls, sitting side by side, who love each other so much, I am filled with hope. In spite of the constant fear simmering beneath the surface, our hearts are filled with gratitude and love. Even with the pain and devastation that has come, I still hope that Marian and all children with NPC will have a brighter future.

This year, as we light the menorah and commemorate the miracle that took place so many centuries ago, I will remember that miracles still happen. I can’t shake and inspect what will unfold in Marian’s future, but we are grateful for each good day that she has and are urgently fighting for more.

Marian’s family has established a nonprofit to raise funds for lifesaving research. To learn more about NPC or to support this cause, please visit hopeformarian.org.

Why is Kirstie Alley Defending Matt Lauer’s Abuse?

Taking a page straight out of “Harvey Weinstein Apologist” Donna Karan’s despicable book, Kirstie Alley is defending Matt Lauer and denouncing the alleged victims of his abuse.

Given her outspoken history of how Hollywood viciously body shamed her and denied her parts as she aged and gained weight, this is even more surprising! But it gets better: In the ’80’s, she also claimed to have been sexually harassed and pressured into compromising positions.

So where is the compassion for others who’ve dealt with the same nightmare? No where to be found in this heartless Tweet: “What the hell is happening? We now live in a country where people lose their jobs when accused of something without proof or trial or in some cases w anonymous accusers? Can’t confront your accuser? This is bull. And IT HURTS THE REAL VICTIMS of abuse. AND innocent people.”

Obviously, nobody should ever be falsely accused; we can all agree on that. But I truly don’t think this is a scam or a shakedown for quick cash. As someone who literally grew up watching Matt and Katie on the Today show, this is really hard for me to accept, too. He seemed—key word here is “seemed”—like the nicest guy in the world (ring a bell, Bill Cosby?).

Over and over again, as these allegations break, multiple accounts start to go public, with very similar details in every case. Instead of asking why people stayed silent for so long, as if it’s a mystery, the terrible reactions should be clear. How many women and men—because there are many, many male victims, too!—are living in fear and silence, not only from the abuse, but the potential fallout of coming forward and confronting the abuser.

This is just not right. We need to believe victims. We need to help victims. Nobody can tell a victim what they would’ve done, or could’ve done, unless you’ve walked in those same shoes. Victims deserve sympathy and assistance—not blame, not shame, and definitely not disbelief. Shame on you, Kirstie!

Foolproof Sleep Tips for Traveling with an Infant or Toddler

Whether you’re on your first child or your fifth, traveling with a little one is never easy, especially when everyone is overtired and grouchy. The following guest post from Denise Stern of Let Mommy sleep offers practical solutions so mom and baby can all enjoy some much-needed rest.

Last Thanksgiving, 48.7 million Americans traveled 50 miles or more from home. We can expect more of the same during this busy travel week. For those traveling with a newborn, infant or toddler, travel can be even more overwhelming.

Here are a few foolproof tips to prepare your baby for travel during the holidays:

1. Practice at home

Many times babies are not used to sleeping anywhere beyond their own crib. Put baby in a travel bed or pack-n-play for naptime at least a few times leading up to the trip.

2. Maintain your routine

Try to maintain your normal bedtime routine as much as possible to help baby feel safe and secure. If weather permits, dress baby in the pajamas, sleepsack, or swaddle blanket that he/she is accustomed to. If renting a full-sized travel crib from a hotel, bring bedsheets from home to recreate a familiar sleep environment. Sing the same bedtime songs you sing at home and read favorite books.

3. Try to stay on baby’s time

If possible, try to keep naptimes and bedtimes as close to the same schedule as at home. When traveling across time zones, gradually adjust baby’s bedtime. Some parents like to travel at night so baby can sleep and wake up at the destination refreshed. This can lead to an exhausting first day of the trip. If you can swap with your husband by alternating napping and caring for baby during the first day, then traveling at night could be a possibility.

4. Car seats are not beds

Once at the destination, do not rely on car seats for safe sleep. While it is tempting to let a sleeping baby spend the night in a car seat or stroller, car seats can sometimes cause breathing problems in babies. Follow the recommendations of the American Association of Pediatrics and the “Back to Sleep” campaign by creating a safe sleep environment and putting baby on back for sleeping in a secure setting.

5. Slow it down

Don’t expect to have a jam-packed trip full of activity. All the new sights, sounds, and experiences are very stimulating and exciting for baby and can lead to fussiness. Keeping baby awake longer than his/her body needs may work for one night or one nap, but fighting against baby’s natural rhythms leads to meltdown. Go at a reasonable pace for the whole family.

About the Author:

Denise Stern is the founder of Let Mommy Sleep, a Baby Nurse and Postpartum Care service based in Washington DC, Philadelphia, and Northern New Jersey. It provides licensed nurses and caregivers with brand new parents to provide nurturing overnight assistance and education to families. This postpartum care is crucial to parents’ health and well-being, especially in these days where families are spread out and there is little to no social support. For more information or to schedule service, check out the website.